Friday, July 12, 2019

Statewide Self Advocacy Conference Registration Open

Hello everyone-

Registration for the Statewide Self Advocacy conference is now open! Here is a link to register for the SANYS Statewide Conference.

When you click on the link it will take you to the SANYS website where you can click and download either the single person registration form or the group registration form.

Please note this year that payment must be sent in with the registration form. Registrations without payment included will not be accepted.

For those in the Buffalo, Batavia, and Rochester areas, we do expect to be able to charter a bus. More details on that will be out soon.

We look forward to seeing you there in October!

Wednesday, March 13, 2019

Register for the 2019 Regional Self Advocacy Conference

The WNY Regional Self Advocacy Conference planning committee is proud to present to you our registration brochure for this year's conference on June 27th and 28th in beautiful Niagara Falls, NY. 

You can register on line, here: or contact us for a paper form.

Please share this with self advocates, friends, and families especially those who do not have access to the internet. 

Also, please consider nominating a deserving person for an award. Contact Sophia Roberts at or 716-560-9307 for an award nomination form. Or speak to Sheila Bush about it if you see her!

We look forward to seeing you there! 

Get Off the Bureaucracy Bus and Reinvest in Us!

Saturday, January 26, 2019

ACTION ALERT Tell Governor Cuomo to #bFair2DirectCare!

Hello everyone- 

The Governor did not put the funding in the budget for Direct Care Staff. We have from now until the budget is passed to speak up about it if this is an important issue to you. Below are some examples of actions you can take. You can always call or write a letter or social media post in your own words.

Sophia Roberts
Self-Advocacy Association of NYS, Inc. (SANYS)
Western Region Coordinator
716.560.9307 - Cell

Tell Governor Cuomo to
Governor Cuomo's Executive Budget proposal fails 
to include the funding necessary to give
Direct Support Professionals (DSPs) a fair, living wage.

Encourage Governor Cuomo to correct this omission and add
the #bFair2DirectCare living wage funding in his budget proposal! 
CALL 518-474-8390 and SAY: 

- I am a [DSP, Parent, Self Advocate, etc.]
and a supporter of #bFair2DirectCare. 

- The developmental disabilities community is in a crisis.

- Right now, Direct Support Professionals (DSPs) across
New York State are making just above minimum wage and
can barely make ends meet, despite the difficult and vital work. 

- These low wages for DSPs have lead to high vacancy
and turnover rates, leaving a devastating impact on
the individuals and families DSPs support. 

- This impacts/ concerns me because [Insert reason
why #bFair2DirectCare is important to you.] 
- Please add the #bFair2DirectCare living wage
funding DSPs deserve to your budget proposal. 


- Share with the Governor why #bFair2DirectCare
funding for DSP is need and why it's important to you! 

- Tag @nygovcuomo in tweets and
@GovernorAndrewCuomo in Facebook posts. 

- Use #bFair2DirectCare in all posts! 

- Sample tweet: Low wages for DSPs have a devastating
impact on families like mine! @nygovcuomo please add 
#bFair2DirectCare living wage funding DSPs deserve
to your budget proposal! 

DDAWNY | 1219 North Forest Road, Williamsville, NY 14221
Update Profile | About our service provider
Sent by in collaboration with
Trusted Email from Constant Contact - Try it FREE today.
Try it free today

Sunday, January 13, 2019

Ten Things You Can do to Improve your Self Advocacy Group

Ten Things You Can do to Improve your Self Advocacy Group

Different groups do different things. This isn’t a be all, end all list and not every suggestion will work for every group. Try at least one or two of these however and we think you might see some positive change.

1. Have More Social Opportunities.

Getting your work done is great but don’t discount the importance of letting your hair down and hanging out with people that you share common interests with in a social setting. A good party can also be a great way to draw in new members.

2. Do Volunteer Work / Community Outreach

Everyone has causes and organizations dear to their heart. Become an active part of your community by supporting these causes as a group with your time and talents. Hold a fundraiser for your favorite local charity or service organization. It feels great and will increase the networking opportunities for your group to get its goals accomplished. Represent your SA group and your works at outside events. Stretch your reach!

3. Have more actual benefits for your members

Raffle off Tickets for local events, find local businesses that may be willing to provide a small discount to your membership. Use your imagination to find subtle and not so subtle ways to thank the members of your group for their time and support.

4. Take Advantage of Social Media

It seems that almost everyone uses some kind of social media to communicate and inform, and in most cases it’s FREE. Whether it’s fun pictures of your last event on Instagram, calendar events, pics, videos and communication via Facebook or short reminders on Twitter, there are TONS of ways to get your word out.

5. BUT Have an actual website
Social media is great but it’s also temporary. An organization needs its own home on the web for a permanent home and platform to keep forever! Fortunately a google account for your group gives you the opportunity to create a blog website, organize and communicate with your contacts, have an email, store important group documents, post group videos on You Tube and tons of other tools. This is also FREE and one login gets you into ALL of it.

6. Simple promotional and contact materials
We can’t tell you how many times we’ve tried to get contact information for a particular group and were unable to. Vistaprint is a great way to print up an order of business cards inexpensively. The groups name, email, contact name and phone number, when it meets, web and social media links, all the important information right there. And make sure they are always available to your membership at every meeting in case someone wants to have a couple in their wallet or purse to help spread the word. Even a flyer will do the trick, just make sure you have them.

7. Have a Focus, even if it’s no focus
Some SA groups have lofty goals and some groups simply support their members in any and all aspects of their lives. Some are tied in with larger organizations and some are social groups. It’s all GREAT. But it’s in your best interest to talk about it decide what you want that focus to be for no other reason than to be able to explain it to someone else when you are inevitably asked what YOUR group is all about. Having a focus, even if it’s no focus will also help guide you in running and growing your group.

8. Hats / Shirts / Hoodies – Membership/Inclusion
This one will cost a little bit of money but when we see a group of people volunteering, at an event or just out and about and they’re all sharing a common shirt, hat, hoodie it makes us take notice. Most people are proud of being part of something bigger than themselves, give them the opportunity to show it!

9. Use the talents of your membership
Everyone has talents, some people are comfortable speaking to others and some aren’t. Some people are very talented on computers and social media. Some people have interesting hobbies that others might want to learn about. Take the time to find out what each member is good at and don’t be afraid to ask them to use some of their talents for the betterment of the group. When someone is valued it makes them happy and will have the added benefit of decreasing the workload for all.

10. Talk it up! Spread the Word!
You wouldn’t be in the group if you didn’t support it! Talk it Up! Tell people, invite your peers to meetings, spread the word about all the good things your SA group is doing, grab a couple of those business cards and keep them in your wallet to give to others. Be Proud! You’re making a difference!


We’d love to list your group, post your events and share your news and successes on We’d love to interview you for a podcast or have some of your members on the SAinAction Television show. It’s what we do!!! Use Us. or

We can’t help you if you don’t let us know what you’re doing…

Friday, December 28, 2018

SAinAction TV: Four Questions at The ADA Walk

This past Summer we joined over 100 advocates, families and supporters in walking over three miles from the Southgate Plaza to the DDSO on East West Road to illustrate the difficulties faced by those who attempt to access these offices without public transportation, as NFTA does not go there. We asked some of the supporters a few questions... Here are their answers...

Friday, September 28, 2018

Gaelynn Lea SAinAction On the Road Interview

Welcome to our first episode of SAinAction On the Road. Join host Alex Insight as he has a great conversation with artist Gaelynn Lea before her show at The Niagara Falls Convention Center.

Tuesday, September 25, 2018

October is Disability History Month!

Please mark your calendars for these important events:

VOICE Accessibility Task Force Monthly Meeting October 10, 2018 695 Elmwood Ave Buffalo - this meeting is for people who are interested in increasing accessibility for people with disabilities in Buffalo

"Focus on the Future, Remember the Past" October 11th, 2018 10am -1pm at McKinley Mall. Check out cool tools in tech for making life better. See demonstrations by people with disabilities of how they use everyday technology to communicate, work, live, and game!

DDAWNY Candidates Hour October 12th, 2018 10am -11am at Southeast Works 181 Lincoln St, Depew. Meet the political candidates who are running for election this November.

No Tap Bowling Tournament October 13th 2018 1pm and 3:30pm at 11249 Maple Ridge Rd Medina, NY. Win money bowling! Fundraiser for the All Stars SA group. Call (585) 318-4474 for more info

Exceptional Entrepreneurs Expo October 13th, 2018 10am -3pm at the Museum of disAbility History 3826 Main Street, Buffalo, NY. Free event with lots of people who own their own business and ideas for fun things to do with your life!

An Hour with Senator Ortt/ Voter Education and Access October 18th, 2018 10am -1pm at the Museum of disAbility History 3826 Main Street, Buffalo, NY. 10-11am Listening Forum with Senator Ortt. 11-12:30pm Try out the Accessible Voting machines 12:30 Suitcase History project presentation by Dave Mack-Hardiman. Free. Pizza fundraiser on site $5 for 2 slices and a drink

Leadership Day October 27th, 2018 12pm-4pm at North Buffalo Community Center 203 Sanders Rd Buffalo. Self advocates and community advocates coming together to learn and teach about issues important to us. A must attend for people who are/ want to be leaders. Poets and artists will present as well.